Asociaciones

Asociaciones de Hemofilia de España 

Otras entidades a las que pertenece Fedhemo 

Asociaciones de Hemofilia del resto del Mundo 

ORGANIZACIONES MIEMBRO DE LA FEDERACIÓN MUNDIAL DE HEMOFILIA

Albanian Hemophilia Association
Address: Poliklinika Specialiteteve Rajoni N1Tirana, Albania
Phone: 355-4222-5417
Fax: 355-4222-5417
Email: ahavera@yahoo.com
Org. type: National Hemophilia Org.
Contact: Mrs. Pranvera Neziri ,President
Association Algérienne des Hémophiles
Address: Institut SIGMA, place du stade 1er novembreImmeuble MEDANETizi-Ouzou, Algeria
Phone: 213-26-212-639213-72-90-02-73
Fax: 213-26-212-639
Email: latifadf58@yahoo.fr

lamhenelatifa@hotmail.com

Org. type: National Hemophilia Org.
Contact: Ms. Latifa Lamhene ,Presidente
Fundación de la Hemofilia (Argentina)
Address: Soler 3485Buenos Aires, CAP. FED., Argentina1425
Phone: 54-11-4963-1755
Fax: 54-11-4963-1755 ext. 29
Email: info@hemofilia.org.ar
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sr. Eduardo A. Diaz ,Vice-President Sr. Carlos Safadi Marquez ,President
Armenian Association of Hemophiliacs
Address: Nersesyan 7Yerevan, Armenia014
Phone: 37410-28381037491-403210
Fax: 374-1-642-111
Email: tanyakhach@rambler.ru

nbarinyan@rambler.ru

Org. type: National Hemophilia Org.
Contact: Mrs. Tanya Khachatryan ,President Mr. David Khanzratyan ,Vice-President Mrs. Svetlana Papazyan ,Vice-President
Haemophilia Foundation Australia
Address: 1624 High StreetGlen IrisMelbourne, Victoria, Australia3146
Phone: 61-3-9885-7800
Fax: 61-3-9885-1800
Email: hfaust@haemophilia.org.au
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Ms. Sharon Caris ,Executive Director Mr. Gavin Finkelstein ,President
Österreichischen Hämophilie Gesellschaft
Address: SelbsthilfezentrumMariahilfer Guertel 4Vienna, Austria1060
Phone: 43-1-595-373343-676-530-3000
Fax: 43-1-59537-3367
Email: office@bluter.at
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Josef Weiss ,Chairman Mag. Thomas Schindl ,Public Relations Mr. Richard Lang ,Youth Secretary Mrs. Sabine Bergmann ,Family Secretary Dr. Robert Fueller ,Medical Affairs
Azerbaijan Republic Association of Hemophilia (ARAH)
Address: Mir Calal str. 83Baku, Azerbaijan1147
Phone: 994-12-513-16-02
Fax: 994-12-513-15-39
Email: azerbaijan@haemophiliac.org

h_gulnara@hotmail.com

Org. type: National Hemophilia Org.
Contact: Mrs. Gulnara Huseynova ,President
Bahrain Bleeding Disorder Society (BBDS)
Address: Salmanya Medical ComplexP.O. Box 12Manama, Bahrain
Phone: 973-3944-8584
Fax:  
Email:

HMukharriq@health.gov.bh

Org. type: National Hemophilia Org.
Contact: Dr. Hussain Jaafar Al-Mukharriq , Dr. Ghada Ameen Helewah ,Deputy
Hemophilia Society of Bangladesh
Address: 17 / 2-C, Tallabag (1st Floor)SukrabadDhaka, Bangladesh1207
Phone: 880-2-812-1091880-18-1913-5787
Fax: 880-2-987-0713
Email: hemophiliabd@gmail.com

najmulalam75@gmail.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Parimal Chandra Debnath ,Vice-President Mr. Nurul Islam ,President Najmul Alam ,General Secretary
Belarusian Association of Hemophilia Patients
Address: 17, Belinskogo Str.Korpus 2Minsk, Belarus
Phone: 375-296779711375-17-2662473375-2-9669-2050
Fax: 375-173-346573375-172-346573
Email: haemophilia@tut.by

golitsyn@gmail.com

Org. type: National Hemophilia Org.
Contact: Mr. Sergei Zinkevich ,
Belgian Haemophilia Society (The)
Address: Rue Grisartraat 38Brussels, BELGIUM1070
Phone: +32-2-346-0261
Fax: +32-2-346-0425
Email: info@ahvh.be
Web site: Click here
Org. type: National Hemophilia Org.
Contact:  
Belize Bleeding Disorders Foundation
Address: P.O. Box 7Punta Gorda Town, C.A., Belize
Phone: 501-669-6750501-663-9685
Fax: 501-722-090501-223-7867
Email: fbardalez@btl.net
Org. type: National Hemophilia Org.
Contact: Mrs. Francisca Bardalez ,President Dr. André Sosa ,Orthopedic Surgeon
Federacion Boliviana de Hemofilia “F.B.H”
Address: n/an/a, Bolivia
Phone: 591-76377288
Fax:  
Email: info@hemofiliabolivia.com

victor@hemofiliabolivia.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Victor Manuel Ponce Rojas ,Presidente Daniel Rodrigo Saavedra Miranda ,Vice-Presidente
Haemophilia Society of Bosnia and Herzegovina
Address: Pofalicka 17Sarajevo, Bosnia and Herzegovina71000
Phone: 387-33-652-532
Fax: 387-33-652-532
Email: uhbh@uhbh.org.ba

adjin@ubhb.org.ba

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Ajdin Hacimic ,President
Botswana Hemophilia Society
Address: Princess Marina HospitalC/o Department of PediatricsP.O. Box 258Gaborone, Botswana
Phone: 267-395-3221 267-319-0083267-390-2458267-7183-8264
Fax: 267-397-3776 267-319-0079
Email: fphatshwane@gov.bw

hjibril@gov.bw

Org. type: National Hemophilia Org.
Contact: Dr. Haruna Jibril ,Ex-Officio Executive Member Mr. Friday Phatshwane ,President Mr. Kebalibile Galedibelwe , Mrs. Kenanoo Phatshwane , Mr. Meshacic Masilo , Mr. Motlatepula Mokgothu , Mr. Unami Thompson ,
Federaçao Brasileira de Hemofilia
Address: Avenida Italia, no. 325, Sala 204 Bairro Sao PelegrinoCaxias do Sul, RS, Brazil95010-040
Phone: 55-54-3224-100455-54-9999-485555-54-8421-0506
Fax:  
Email: hemofilia@terra.com.br

taniabfh@terra.com.br

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Emilio da Rocha Neto ,Vice-president Mrs. Tania Maria Onzi Pietrobelli ,President Cassia Regina Zapellini de Souza ,
Bulgarian Haemophilia Society
Address: J.K. StrelbishteKostenski Vodopad Str. Bl. 11A, Apt. 53Sofia, Bulgaria1404
Phone: 359-2-8582-338
Fax:  
Email: office@hemo-bg.org

info@hemo-bg.org

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Jordan Nedevski ,President
Cambodian Haemophilia Association
Address: 100 Federation of Russia Blvd.Phnom Penh, Cambodia
Phone: 855-12-764-575855-16-874-191855-12-836-837
Fax:  
Email: vorleaknuon@yahoo.com

sophalces@yahoo.com

Org. type: National Hemophilia Org.
Contact:  
Association des Hémophiles du Cameroun
Address: B.P. 3151Rue 4078/707 (derrière la Chapelle de Kondengui)Yaoundé, Cameroon
Phone: 237-77-95-66-46237-99-51-96-60
Fax:  
Email: takou_serges@yahoo.fr

ah_cam2002@yahoo.fr

Org. type: National Hemophilia Org.
Contact: M. Serges Desire Takou ,Président
Canadian Hemophilia Society
Address: 1255 University St.Suite 400Montreal, Quebec, CanadaH3B 3B6
Phone: 514-848-05031 800 668-2686
Fax: 514-848-9661
Email: chs@hemophilia.ca
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Craig Upshaw ,President Mr. David Page ,Executive Director
Sociedad Chilena de la Hemofilia
Address: Ave. Carmen No. 1029Santiago CentroSantiago, Metropolit, CHILECP 833-0925
Phone: 56-2-457-116256-9-9848-8139
Fax: 56-2-665-0919
Email: sociedadchilenadelahemofilia@gmail.com

ismaelchb@gmail.com

Org. type: National Hemophilia Org.
Contact: Sr. Ismael Chacana Bruna ,Presidente
National Hemophilia Cooperative Group
Address: Institute of Hematology & Blood Disease HospitalChinese Academy of Medical Sciences288 Nanjin RoadTianjin, China300020
Phone: 86-22-2390-9122
Fax: 86-22-2390-9047
Email: yangrenchi@hotmail.com
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Prof. Renchi Yang ,President Dr. Lei Zhang , Ms. Boxia Ma ,
Liga Colombiana de Hemofílicos
Address: Calle 37No. 28 A -17, Barrio la SoledadBogotá, D.C., Colombia
Phone: 57-1-344-00-5557-1-244-20-95
Fax: 57-1-547-1162
Email: colhemof@gmail.com
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sra. Maritza Riaga de Robledo ,Presidenta Dr. Sergio Robledo ,Scientific Director
Asociación Costarricense de Hemofilia (ASOHEMO)
Address: 100 Metros NorteMunicipalidad de TibásSan Jose, Costa Rica1089-1100
Phone: 506-2240-5498506-8919-4953
Fax: 506-2240-5498
Email: contact@asohemo.com

mcalvohemofiliacr@hotmail.es

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sra. Maricruz Calvo Zúñiga ,Administradora Asohemo Sr. Carlos Enrique López Calvo ,Presidente
Croatian Hemophilia Society
Address: Div. of Hematology, Dept. of Internal MedicineUniversity Hospital REBRO, Kispatic Str. 12Zagreb, Croatia10000
Phone: 385-1-23-88-757385-1-23-88-277 # 27
Fax: 385-1-332-4650
Email: tomislav.raguz1@zg.htnet.hr

ivica.rovis@zagreb.hr

Org. type: National Hemophilia Org.
Contact: Mr. Tomislav Raguz ,
Sociedad Cubana de Hemofilia
Address: Apartado Postal 8070Ciudad de La Habana, Cuba10800
Phone: 537-643-8268537-643-8695537-203-8762537-644-7429
Fax: 537-644-2334
Email: ihidir@hemato.sld.cu
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sr. Eduardo Leal ,Presidente Sra Walkyria Cao ,Secretaria de Relaciones Internacionales Sr. Jesus Miguel Zaldivar Oliva ,Vicepresidente
Pancyprian Org for Rehabilitation of Hemophiliacs (POAA)
Address: 50 Pentelis Street, DasoupolisP.O. Box 28726Nicosia, Cyprus2081
Phone: 357-22-426301
Fax: 357-22-313-250
Email: marasun@cytanet.com.cy
Org. type: National Hemophilia Org.
Contact: Mr. Andreas Maratheftis ,President
Czech Society of Hemophilia
Address: U Nemocnice 1 (UHKT)Prague 2, Czech Republic128 20
Phone: 420-777-078-509
Fax:  
Email: info@hemofilici.cz

dolejsv@tiscali.cz

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Vladimir Dolejs ,President Dr. Martin Bohun ,Vice President
Danish Haemophilia Society (The)
Address: Frederiksholms Kanal 2, 3. salCopenhagen, DenmarkDK-1220
Phone: 45-3314-5505
Fax: 45-3314-5509
Email: dbf@bloderforeningen.dk
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Terkel Andersen ,President
Fundación Apoyo al Hemofílico (FAHEM)
Address: Calle Hatuey, # 6Los CacicazgosSanto Domingo, Distrito N, Dominican Republic
Phone: 809-482-1375809-412-8584809-707-0287
Fax: 809-549-7885
Email: vicentem2@hotmail.com
Org. type: National Hemophilia Org.
Contact: Mrs. Haydee Benoit de Garcia ,President Dr. Joanne Taveras ,Asesora Vicente Soriano ,Vice President
Fundación Hemofilica del Ecuador, FUNDHEC
Address: Calle Yánez Pinzón N 26-76entre Av. Colón y Calle La NiñaQuito, Pichincha, Ecuador
Phone: 593-2-295-4587593-2-258-2485
Fax: 593-2-570-424593-2-570-421
Email: hemofiliaecuador@hotmail.com

abdon_calero@hotmail.com

Org. type: National Hemophilia Org.
Contact: Sr. Abdon Calero ,
Egyptian Society of Hemophilia
Address: Emergency Unit for Blood Disease Red Crescent Building29 El Galaa Street Cairo, Egypt, Arab Rep.
Phone: 20-2-2574-2667
Fax: 20-2-2336-4277
Email: nadiachl@yahoo.com

medlab@link.net

Org. type: National Hemophilia Org.
Contact: Dr. Nadia Moharram ,
National Hemophilia Association of Eritrea
Address: National Blood Bank of EritreaDenden Street #80P.O. Box 212Asmara, Eritrea
Phone: 291-1-200-357 291-7-158-527
Fax: 291-1-202-780
Email: yifdat@yahoo.com

blenoptics@yahoo.com

Org. type: National Hemophilia Org.
Contact: Dr. Yifdeamlak Tesfamariam Baraki ,President Mr. Tseggai Abraha Tesfazghi ,Secretary Mr. Tekle Debesai Hailu ,Treasurer Mr. Aron Tecle ,Member
Estonian Haemophilia Society
Address: P. K. 218Tartu, Estonia50002
Phone: 372-502-1717
Fax:  
Email: ehy@hemofiilia.ee

president@hemofiilia.ee

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Ade Kallas ,President
Ethiopian Hemophilia Society
Address: Tikur Anbessa Specialized HospitalChurchill RoadP. O. Box: 14227Addis Ababa, Ethiopia
Phone: 251-115-156170
Fax:  
Email: drkalidasrat@yahoo.com

amhagm@ethionet.et

Org. type: National Hemophilia Org.
Contact: Dr. Kalid Asrat , Dr. Amha Gebremedhin , Tadesse Belay ,
Finnish Hemophilia Society (The)
Address: PL 631Helsinki, Finland00101
Phone: 358-9-4368-2992
Fax: 358-9-458-3910
Email: info@hemofilia.fi
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Riku Lamposaari ,
Association Française des Hémophiles
Address: 6, rue Alexandre-CabanelParis, Cedex-15, France75739
Phone: 33-1-4567-7767
Fax: 33-1-4567-8544
Email: info@afh.asso.fr
Web site: Click here
Org. type: National Hemophilia Org.
Contact: M. Norbert Ferré ,President
Georgian Association of Haemophilia and Donorship
Address: A. Kazbegi Av. 22Tbilisi, Georgia0177
Phone: 995-32-391-859995-99-100-254995-93-129-265
Fax: 995-32-305-454995-32-001-127995-32-001-077
Email: gahd@wanex.net

davidgoliath@wanex.net

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Romanoz Khomasuridze ,
Deutsche Hämophiliegesellschaft (DHG)
Address: Neumann-Reichardt-Str, 34Hamburg, GERMANY22041
Phone: 49-40-672-2970
Fax: 49-40-672-4944
Email: dhg@dhg.de
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Werner Kalnins ,President Dr. Uwe Schlenkrich ,Vice-President
Ghana Haemophilia Society
Address: P.O. Box CS 8561Tema, Ghana
Phone: 00233-244-32758900233-244-959739
Fax: 00233-21-660624
Email: mkboachie@yahoo.com
Org. type: National Hemophilia Org.
Contact: Mr. Martin Boakye , Evelyn Boakye ,
Greek Haemophilia Society
Address: 22 P. Demetrakopoulou StreetAthens, GREECEGR-111 41
Phone: 30-210-523-266730-6977-309-369
Fax: 30-210-804-9801
Email: pittadj@otenet.gr
Org. type: National Hemophilia Org.
Contact: Ms. Jane Pittadaki ,Executive Board Member
Asociación Guatemalteca de Hemofilia
Address: 4a avenida 10-30 zona w2do nivelGuatemala City, Guatemala
Phone: 502 52049067502 22514986
Fax: 502-2-435-0099
Email: aghmarisol@gmail.com

aghmarisol@hotmail.com

Org. type: National Hemophilia Org.
Contact: Sra. Marisol García de Monterroso ,Presidenta
Sociedad Hondureña de Hemofilia
Address: Apartado postal 20261Comayaguela, C.A., Honduras
Phone: 504-799-4605504-9907-8176
Fax:  
Email: anir80luna@yahoo.com

wilger79@yahoo.com

Org. type: National Hemophilia Org.
Contact: Sra. Maria del Carmen Agurcia Elvir ,Presidenta Sr. Wilmer Gerardo Rodriguez ,Secretario
Magyar Hemofilia Egyesulet
Address: Hungarian Hemophilia Society1538 BudapestPf. 529Budapest, Hungary
Phone: 36-30-570-4804
Fax:  
Email: mhe@mhe.hu

gabor.varga@mhe.hu

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Gabor Varga ,President
Icelandic Hemophilia Society (The)
Address: Armuli 5Reykjavik, Iceland108
Phone: 354-543-1000354-824-5414
Fax: 354-543-5016
Email: born@islandia.is
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Ms. Gudrun Bragadottir ,Nurse Coordinator Mr. Eyjolfur Larusson , Birger Orn Steingrimsson ,President
Hemophilia Federation (India)
Address: A-128, Mohammadpur(Behind Bhikaji Cama Place)New Delhi, India110066
Phone: 91-11-2617-402091-11-2617-5791
Fax: 91-11-2617-7209
Email: support@hemophilia.in

president@hemophilia.in

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Cecil Ross ,Vice President – Medical Dr. Kanjaksha Ghosh ,President Rtn.Wg.Cdr. S. Roychoudhury , Mr. Vikash Goel ,Vice President – Development
Indonesian Hemophilia Society
Address: RS Dr. Cipto MangunkusumoJI. Diponegoro No. 71Jakarta Pusat, DKI Jakart, Indonesia10430
Phone: 62-21-391-5738
Fax: 62-21-391-5738
Email: hemofilia_id@yahoo.com

setiabudy@cbn.net.id

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Prof. S. Moeslichan Mz ,President Dr. Rahajuningsih D. Setiabudy ,(Clinical Pathologist) Ms. Novi Riandini Gunarso ,
Iranian Hemophilia Society
Address: No. 5, Shafiei Alley, 1st floorVesal Shirazee StP.O. Box 14185-144Tehran, Iran, Islamic Rep.14185
Phone: 98-21-649-8559
Fax: 98-21-649-8558
Email: info@hemophilia.org.ir

shirinravanbod@hemophilia.org.ir

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Aliakbar Tchupan ,
Iraqi Hemophilia Society
Address: Sector 714 – St. 35 – House 32 ZayunaBaghdad, Iraq
Phone: 964-774-4920
Fax:  
Email: drmurtatha@yahoo.com
Org. type: National Hemophilia Org.
Contact: Mr. Saleem Maisser ,
Irish Haemophilia Society Ltd.
Address: First Floor, Cathedral CourtNew StreetDublin, Ireland8
Phone: 353-1-657-9900
Fax: 353-1-657-9901
Email: info@haemophilia.ie

brian@haemophilia.ie

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Brian O’Mahony ,Chief Executive Ms. Margaret Dunne ,Administrator Mr. Michael Davenport ,Chairman Mrs. Debbie Greene ,Administrator
Israeli Hemophilia Association – ALEH
Address: P.O. Box 9013Ramat Efal, Israel52190
Phone: 972-3-903-1444972-56-680-406
Fax: 972-3-903-1444
Email: idit@hemophilia.org.il

hemophil@bezeqint.net

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mrs. Idit Avivi ,Executive Manager
Federazione delle Associazioni Emofilici – Onlus
Address: Via Veratti, 2Milan, Italy20155
Phone: 39-02-33-00-41-26
Fax: 39-02-308-4005
Email: segreteria@fedemo.it
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Gabriele Calizzani ,President Mrs. Isabella Moavero , Daniele Preti ,Executive Director Romano Arcieri ,Member of the Board
ONG Internationale Hémophilie et autres Maladies du Sang
Address: 08 BP 1206 Abidjan, IVORY COAST08
Phone: 225-47-106-460225-03-592-404225-07-924-374225-22-423-523225-04-097-575
Fax:  
Email: axel_yannick2@yahoo.fr

hemophile_ci@yahoo.fr

Org. type: National Hemophilia Org.
Contact: Mrs. Lucie Yolande Guehi ,President M. Daruis Omer Guehi , Dr. Emile Serge N’Zore ,
Jamaica Hemophilia Committee
Address: Sub Department of HematologyDepartment of PathologyUniversity Hospital of the West IndiesMona, Kingston 7, Jamaica
Phone: 876-927-1410876-370-2557
Fax: 876-977-1811
Email: gwharfe@cwjamaica.com
Org. type: National Hemophilia Org.
Contact: Dr. Gilian Wharfe ,Chairman
Japan Committee for People with Hemophilia
Address: Kioi Royal Heights 4013-29, Kioi-choChiyoda-kuTokyo-to , Japan102-0094
Phone: 81-3- 5228-1623
Fax: 81-3- 5228-1623
Email: info@j-hemo.fourh.jp

akiko-k@habataki.gr.jp

Org. type: National Hemophilia Org.
Contact: Mr. Jugo Hanai , Mr. Yuji Ohta , Mr. Yutaka Nishina ,Chairman
Jordan Thalessemia and Hemophilia Society
Address: P.O. Box 910956Amman, Jordan11191
Phone: 962-6-565-0832
Fax: 962-6-565-0832
Email: awajan@psut.edu.jo
Org. type: National Hemophilia Org.
Contact: Mr. Arafat Awajan ,
The Kazakhstan Association of Disabled Persons with Hemophilia
Address: Zheltoksan str. 78/86Almaty, Kazakhstan480009
Phone: 7-7272-7702077-7272-212-848
Fax: 7-7272-212-848
Email: kazgemo@mail.ru

ngladky@inbox.ru

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mrs. Tamara Grigor’evna Rybalova ,President
Kenya Haemophilia Association
Address: Kenyatta National Hospitalc/o Haematology DepartmentP.O. Box 19676Nairobi, Kenya
Phone: 254-2-721-815254-2-726-30025 733 714 386
Fax: 254 -020-725275254-020-711-561
Email: walter.mwanda@uonbi.ac.ke

mwanda@africaonline.co.ke

Org. type: National Hemophilia Org.
Contact: Prof. Walter Mwanda , Emmanuel Kaunda , Lilian Atieno , Anastasia Khasiani ,
Korea Hemophilia Foundation
Address: 1628-26 Seocho-DongSeocho-GuSeoul, Korea, Rep.137-879
Phone: 82-2-3473-6100
Fax: 82-2-3473-6644
Email: office@kohem.org

kohem@kohem.org

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Yong-Mook Choi ,President Mr. Jung-Ku Yoon ,Executive Director
Kuwait Hemophilia Committee
Address: Kuwait, Bayan, block 7Street 1, Jada 11, house 11PO Box 1637Salmiyah , Kuwait22017
Phone: 965-666-17789
Fax: 965-253-95119
Email: legato7@hotmail.com

fsayegh63@gmail.com

Org. type: National Hemophilia Org.
Contact: Dr. Faisal Al-Sayegh ,Consultant Internist & Clinical Hematologist Dr. Ahmed Al-Qallaf ,Head and coordinator
Community of Handicapped Hemophiliacs
Address: Mira Ave. 60Office 5Bishkek, Kyrgyz Republic720044
Phone: 996-312-541905996-312-548972
Fax:  
Email: hemopfiliya_kg@bk.ru

b_kutukeev@gmail.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sergey Filipenko ,President
Latvia Hemophilia Society
Address: Tomsona 19-15Riga, LatviaLV 1013
Phone: 00-371-29-157-967
Fax: 00-371-67-33-88-49
Email: baiba.ziemele@inbox.lv
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Ms. Baiba Ziemele ,Chairwoman of Board
Association Libanaise de l’Hémophilie
Address: Jal El Dib, Adib Rached RoadDaoud Hayek BuildingB.P. 70 880Antelias, LEBANON
Phone: 961-4-713-055961-1-890-467961-3-286-886
Fax: 961-4-722-420
Email: aslbhemo@inco.com.lb
Org. type: National Hemophilia Org.
Contact: Mme. Solange Sakr ,President
Haemophilia Association of Lesotho (HAL)
Address: Queen Elizabeth II HospitalDepartment of PediatricsP.O. Box 122Maseru, Lesotho100
Phone: 266-2231-2501266-5894-9294266-6312-1677
Fax:  
Email: mpmootisa@webmail.co.za
Org. type: National Hemophilia Org.
Contact: Dr. Grace Phiri , Moeketsi Peter Mootisa ,Chairman
Lithuania Haemophilia Association
Address: Gedimino str. 28-8JonuciaiKaunas, Lithuania53254
Phone: 370-650-92734
Fax: 370-37-320464
Email: info@hemofilija.lt

hemofilija@gmail.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Egidijus Sliauzys ,President
Association Luxembourgeoise des Hémophiles – ALH
Address: BP 2692Luxembourg, LuxembourgL-1026
Phone: 352 2728 04650049 228 287 0
Fax: 352-450-505-247
Email: jean.claude.faber@lu.numericable.net
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Jean-Claude Faber ,President
Civil Haemophilia Assn of Rep. of Macedonia Hemolog
Address: Anesti Panovski 12/13Bitola, Macedonia, FYR7000
Phone: 389-70-291-043389-70-307-892
Fax: 389-47-282-459
Email: atanasov.simon@yahoo.com
Org. type: National Hemophilia Org.
Contact: Mr. Simon Atanasov ,President Mrs. Zorica Furnadziska ,
Hemophilia Society of Malaysia
Address: National Blood CentreJalan Tun RazakKuala Lumpur, MALAYSIA50400
Phone: 603-2695-5581603-7875-8552603-7877-1202603-7875-8552
Fax: 603-2698-0701603-7877-1202
Email: hemophiliamalaysia@yahoo.com
Org. type: National Hemophilia Org.
Contact: Dr. Faraizah Abdul Karim ,President
Federación de Hemofilia de la República Mexicana
Address: Municipio Libre 62 Col PortalesDel. Benito JuárezMexico, DF, MexicoC.P. 03300
Phone: 52-55-89-95-82-8852-55-56-74-36-97
Fax: 52-55-8995-8288
Email: carlos.gaitan@hemofilia.org.mx

hemofmex@hotmail.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sr Carlos Gaitan Fitch ,Presidente
Moldavian Public Society of Haemophilie
Address: 17, Dacia bd., Apt. 3Chisinau, MOLDOVAMD-2038
Phone:  
Fax: 373-22-55-22-21
Email: ostrofet@mcc.md

hemophilia@mail.md

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr Ghenadie Ostrofets ,
Mongolian Association of Haemophilia
Address: P.O Box 754Ulaanbaatar, Mongolia210644
Phone: 976-9968-8584976-1-317-085
Fax: 976-1-131-1965
Email: mon.ass.hem@mongol.net
Org. type: National Hemophilia Org.
Contact: Mr. Erdenebulgan Tsogbadrakh ,Chief Coordinator Mr. Batbaatar Davaanyam ,Director
Association Marocaine des Hémophiles
Address: Avenue Hassan IIRésidence Ifrane, appt N° 15 (3° Etage)B.P. 6687 Madinat Al IrfaneRabat, Morocco
Phone: 212-05-37-23-11-54
Fax: 212-05-37-23-11-54
Email: assmhemophilie@yahoo.fr
Org. type: National Hemophilia Org.
Contact: Mr. Jaouad Chbihi ,President Mr. Torchy Said ,Secretariat/AMH
Nepal Hemophilia Society
Address: GPO Box: 13659Kathmandu, Nepal
Phone: 977-1-5553003977016217499977-1-9841-467113
Fax:  
Email: nepalhemo@wlink.com.np
Org. type: National Hemophilia Org.
Contact: Dr. Ranjan Singh ,Chairman Mr. Bedraj Dhungana ,General Secretary
Netherlands Haemophilia Society (The)
Address: Jan van Gentstraat 130Badhoevedorp, Netherlands1171 GN
Phone: 31-20-659-9021
Fax: 31-020-659-6030
Email: nvhp@nvhp.nl
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mrs. Willy Valk , Mr. Ad Veldhuizen ,President Mrs. Manon Degenaar-Dujardin ,CEO
Haemophilia Foundation of New Zealand
Address: P.O. Box 7647SydenhamChristchurch, New Zealand8240
Phone: 64-3-371-7477
Fax: 64-3-344-5206
Email: info@haemophilia.org.nz

belinda@haemophilia.org.nz

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Ms. Belinda Burnett ,Chief Executive Officer Mr. Deon York ,President Mr. David Habershon ,Vice-President Mr. Grant Hook ,Vice-President
Asociación Nicaragüense de Hemofilia
Address: c/o Cruz Roja NicaraguensePrograma de HemofiliaReparto BlemonteKm. 7 Carretera SurManagua, Nicaragua
Phone: 505-2265-1406
Fax: 505-2265-1406
Email: hemofilianica@yahoo.es
Org. type: National Hemophilia Org.
Contact: Sr. Javier Rivas Ojeda ,Presidente Sr. Byron Silva Orozco ,Vice-Presidente
Haemophilia Foundation of Nigeria
Address: AG 17 Katsina RoadKaduna, Kaduna, Nigeria
Phone: 234-62-373-174234-803-679-1944234-803-320-6779
Fax:  
Email: infodesk_hfn@yahoo.com
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mrs. Megan Buckie Adediran ,President Mr. Innocent Ogbanje ,Secretary
Norwegian Hemophilia Society
Address: v/Turid NymoenFurubakken 5Nesoddtangen, Norway1450
Phone: 47-9-016- 3037
Fax:  
Email: fbin@fbin.no

ntor-ols@online.no

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Nils Tore Olsen , Mrs. Turid Nymoen ,
Oman Hemophilia and Inherited Bleeding Disorders (OHIBD) Programme
Address: College of Medicine & Health SciencesSultan Qaboos UniversityP.O. Box 35Al-Khod, OmanPC 123
Phone: 968-24143403968-24143433
Fax: 968-24413419
Email: zakiya.Allamki@gmail.com

ishaqm@squ.edu.om

Org. type: National Hemophilia Org.
Contact: Prof. Zakiya Al-Lamki ,Chairperson Mr. Ishaq Al Maamari ,Deputy Chair
Pakistan Hemophilia Patients Welfare Society (PHPWS)
Address: 10-A Jail Road(Inside Gulshan Carpets Building)Lahore, Punjab, PAKISTAN
Phone: 92-42-357-1763292-300-4008088
Fax: 92-235-717632
Email: masood.fareed@live.com

info@pakhpws.org

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Masood Fareed Malik ,President Dr. Shahla Sohail ,Patron
National Center for Blood Diseases ”Hippocrates”
Address: Thalassemia & Haemophilia UnitPalestine Avenir FoundationNearby Ramallah HospitalP.O. Box 2066Ramallah, West Bank, PALESTINE
Phone: 972-2-2967845972-5-9940-8720
Fax: 972-2-2296-7845
Email: hippocratesm@palnet.com
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mrs. Evangelia Alawneh ,General Director
Fundación Panameña de Hemofilia
Address: Hospital de NiñoAvenida Balboa y calle 34Edificio consulta externa, Segundo pisoApartado 0839-00285Cuidad de Panamá, Zona 13, Panama
Phone: 507-227-9332507-512-9813 ext. 25
Fax: 507-227-9332
Email: funpa_hemofili@hotmail.com

alaisamelgar@hotmail.com

Org. type: National Hemophilia Org.
Contact: Sra. Alaisa Arauz de Melgar ,Directora Ejecutiva Lic. Yudiana Montenegro ,Presidenta
Fundación de Ayuda al Hemofílico (FUNDAHEMO)
Address: Calles Mcal Lopez508 Esq 1o de MarzoSau Lorenzo, Paraguay
Phone: 595-21-570-652595-981-904-722
Fax: 595-0224-632815595-21-585-002
Email: fundahemo_py@hotmail.com

carlos_yasy@hotmail.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sr. Carlos Yasychyn ,President
Asociación Peruana de la Hemofilia
Address: Casa de la Cultura de LinceAv. Militar 1966Lince, Lima 14, Peru
Phone: 0511+265057151-986635707
Fax: 51-1-265-0571
Email: diego.gavidia@hotmail.com

aspeh@hemofiliaperu.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sr. Félix Javier Álvarez Álvarez ,Vicepresidente Dr. Saúl Mendoza Ordoñez ,Asesor Sr. Diego Gavidia Huanay ,Presidente Sra. Julia Robles ,Tesorera
HAPLOS – Hemophilia Association of the Philippines for Love and Service, Inc.
Address: Hospital of the Infant Jesus Rm 253Laon Laan St.,SampalocManila, Philippines1008
Phone: 63-2-732-5085
Fax: 63-2-749-9704
Email:

reysar09@yahoo.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Reynaldo R. Sarmenta ,Chairman
Polish Hemophilia Society
Address: I. Gandhi 14Warsaw, POLAND02-776
Phone: 48-22-629-991548-71-353-447048-42-633-5358 # 48-60-518-0127 #
Fax: 48-22-822-151148-71-328-1713
Email: bogdan.gajewski@gmail.com

zgrzelak@dilnet.wroc.pl

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Adam Sumera ,Vice-President Dr. Zdzislaw Grzelak ,Vice-President Mr. Bogdan Gajewski ,President
Associação Portuguesa de Hemofilia e de outras Coagulopatias Congénitas
Address: Av. João Paulo II, lote 530, loja ALisbon, Portugal1950-158
Phone: 351-21-859-8491351-21-895-8539
Fax: 351-837-1065
Email: info@aphemofilicos.pt
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Maria de Lourdes Fonseca ,Vice-President João Paulo Barrote ,President
Qatar National Hemophilia Society
Address: Hematology & Oncology Department Al Amal Hospital Hamad Medical CorporationP.O. Box 3050Doha, QATAR
Phone: 974-4439-7895974-5554-6264
Fax: 974-4439-7857
Email: ussama.alhomsi52@gmail.com

dr_abulaban@hotmail.com

Org. type: National Hemophilia Org.
Contact: Dr. Mohamad Ussama Al Homsi , Dr. Mohamed Abu-Laban ,
Romanian Hemophilia Association
Address: Str. I. Nemoianu Nr. 2Timisoara, Romania300111
Phone: 40-256-295-97740-256-201-876
Fax: 40-256-295-978
Email: andreindan@yahoo.com

delimar@rdslink.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr Delia Mihailov ,Vice President Daniel Andrei ,President
Russian Hemophilia Society
Address: 4-A, Novoviy Zycovsky pr.Moscow, Russian Federation125167
Phone: 7 (495) 612-20537 (495) 612-3884
Fax: 7 (495) 612-2053
Email: office@hemophilia.ru

aph@blood.ru

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Yuri Zhulyov ,President Mrs. Nadia Arkhipova ,Vice-President Mr. Vladimir Berezin ,Member of Board
National Hemophilia Foundation of Saudi Arabia (NHFSA)
Address: King Faisal Specialist Hospital and Research Centre (KFSHRC)Department of Pediatric Hem/Onc. MBC 53Thrombosis Hemostasis Program P.O. Box 3354Riyadh, SAUDI ARABIA11211
Phone: 966-1-442 6666
Fax: 966-1-442-3941966-1-246-1033
Email: halzahrani@kfshrc.edu.sa
Org. type: National Hemophilia Org.
Contact: Dr Hazzaa A. Al-Zahrani ,
Association Sénégalaise des Hémophiles
Address: Centre National de Transfusion SanguineAvenue Cheikh Anta DiopBP: 5002 Dakar – FannDakar, Senegal
Phone: 221-33-825-05-09221-33-835-88-78221-77-640-67-40
Fax: 221-824-95-30
Email: hopemohamed@hotmail.com
Org. type: National Hemophilia Org.
Contact: Mr. Dame Mohamed Yassine ,President
Serbian Hemophilia Society
Address: Tomiceva 23Zrenjanin, SERBIA AND MONTENEGRO23000
Phone: 381-64-3284357
Fax: 381-23-525360
Email: vladailijin@sbb.rs

kontakt@hemofilija.org.rs

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Vladimir Ilijin ,
Singapore Haemophilia Society
Address: Farrer Road Post OfficeP.O. Box 273Singapore, Singapore915810
Phone: 65-6449-0289
Fax: 65-6449-0523
Email: secretary@haemophilia.org.sg

kimloongan@yahoo.com.sg

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dr. Tan Hooi Hwa ,President Dr. Gan Kim Loon ,Vice President
Slovenské Hemofilické Zdruzenie
Address: Antolska 11Bratislava, Slovak RepublicSK-851 07
Phone: 421-2-6353-1453
Fax: 421-53-446-5154
Email: shz@shz.sk
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Dipl. Ing. Jaroslav Janovec ,President
Drustvo Hemofilikov Slovenije
Address: Tavcarjeva 2Ljubljana, SloveniaSI-1000
Phone: 386-1-522-9305
Fax: 386-1-522-9294
Email: jfaganel@celjska-mohorjeva.si
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Joze Faganel , Mr. Uros Brezavscek ,
South African Haemophilia Foundation
Address: P.O. Box 172Plumstead, SOUTH AFRICA7801
Phone: 27-21-785-714027-82-882-6420
Fax: 27-21-785-7140
Email: bradley.rayner@za.didata.com

butlersr@iafrica.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sr. Anne Gillham ,Haemophilia Nurse Coordinator Mr. Bradley Rayner ,National Chairman Ms. Judy Butler ,Operations Manager
Federación Española de Hemofilia
Address: Instituto de Salud Carlos III – Pabellón 16Calle Sinesio Delgado 4Madrid, Spain28029
Phone: 34-91-314-650834-91-314-7809
Fax: 34-91-314-5965
Email: fedhemo@hemofilia.com

puche@hemofilia.com

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sra. Yolanda García ,
Hemophilia Association of Sri Lanka
Address: #19, Devanampiyatissa Mawatha (Off Darly Road)Colombo, Sri Lanka10
Phone: 94-71-255-6500 94-72-994-7474
Fax: 94-11-243-6752 (Attn. Mr. Ziyadh)
Email: ziyadh19@yahoo.com
Org. type: National Hemophilia Org.
Contact: Mr. Ziyadh Hamieerd ,National Secretary Mr. Pinsiri Bandara Godamunna ,President
Sudanese Hemophilia Care Association
Address: P. O. Box 44467Khartoum, 11114, Sudan
Phone: +249-912254335
Fax:  
Email: m_satti5@hotmail.com

abdelsalambashir@ymail.com

Org. type: National Hemophilia Org.
Contact: Dr. Abd Alsalam Ibrahim Bashier , Dr. Maria Satti ,Secretary
Surinamese Society for Hemophilia Patients
Address: Van Ommerenstraat 21Paramaribo, Suriname
Phone: 00-597-400506
Fax:  
Email: john@sshp.sr
Web site: Click here
Org. type: National Hemophilia Org.
Contact: John Tjong Tjin Joe , Lou van Beetz ,
Swedish Hemophilia Society (FBIS)
Address: P.O. Box 1386Sundbyberg, SwedenSE-17227
Phone: 46-8-5464-0510
Fax: 46-8-5464-0514
Email: sarman@fbis.se

info@fbis.se

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Ms. Eva Sarman ,Chief Executive Mr. Mikael Deragarden ,Vice-President Mr. Daniel Arnberg ,President Ms. Anna Tollwé ,Vice-President
Swiss Hemophilia Association
Address: Mühlibachstr. 5,Altstätten, SwitzerlandCH-9450
Phone: 41-44-977-2868
Fax: 41-44-977-2869
Email: administration@shg.ch
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mrs. Heike Gieche ,President Jörg Krucker ,Executive Director
Syrian Hemophilia Society Center
Address: Damascus-BabMusallaDamascus, Syrian Arab Republic
Phone: 963-11-543-6318963-93-335-4964
Fax:  
Email: t-ali@scs-net.org
Org. type: National Hemophilia Org.
Contact: Dr. Tahani Ali ,Director
Haemophilia Society of Tanzania
Address: Department of Haematology and Blood TransfusionMuhimbili University of Health and Allied Sciences (MUHAS)PO Box 65001 Dar es Salaam, Tanzania
Phone: 255-754-541517255-713-307170
Fax:  
Email: richardmazingira@yahoo.co.uk

richardminja@norplantz.org

Org. type: National Hemophilia Org.
Contact: Mr. Richard Minja ,President of Hemophilia Society
National Hemophilia Foundation of Thailand
Address: 171 Rama VI Road, Soi 37Bangkok, Thailand10400
Phone: 66-2-279-0479668-1-171-4969 (Prof
Fax: 66-2-279-047966-2-664-4130 (Krutvecho)
Email: rapis@mahidol.ac.th

triroj@pmk.ac.th

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Prof. Parttraporn Isarangkura ,President Dr. Triroj Krutvecho ,Secretary
Society for Inherited & Severe Blood Disorders
Address: P.O. Box 421c/o Busy Business Systems & Equipment (Rental) Ltd.105 Frederick StreetPort of Spain, Trinidad and Tobago
Phone: 1-868-627-9456/7/81-868-760-0150
Fax: 868-627-9446
Email: indra.rampaul@gmail.com
Org. type: National Hemophilia Org.
Contact: Mrs. Indra Rampaul ,Secretary
Association Tunisienne des Hémophiles
Address: BP 49 – Bab MenaraTunis, TUNISIA1008
Phone: 216-23-253-598216-98-311-731 (president)
Fax: 216-70-615-578
Email: ath@email.ati.tn

t.raissi@email.ati.tn

Org. type: National Hemophilia Org.
Contact: Pr. Emna Goudir-Belhadjali ,President Mr. Taoufik Raissi ,Vice-President
Hemophilia Society of Turkey (The)
Address: Atatürk BulvariKendir Sok. No. 9/BSSk Binalari ArasiFatihIstanbul, Turkey34083
Phone: 90-212-524-064590-212-621-119990-532-650-8590
Fax: 90-212-532-1103
Email: info@turkhemoder.org

hulya@turkhemoder.org

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Prof. Bulent Zulfikar ,President Dr. Fikret Bezgal ,Staff Physician & PWH Mediha Tekinel ,Nurse Neslihan Diler ,Nurse
Ukrainian Hemophilia Association
Address: Rizhskaya 1Kyiv, UKRAINE04112
Phone: 38-044-242-250638-044-331-940638-067-456-8888
Fax: 38-044-242-2506
Email: hemoukr@gmail.com

vis@vicatv.kiev.ua

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Aleksandr Shmilo ,President
UK Haemophilia Society
Address: Petersham House, First Floor57a Hatton GardenLondon, United KingdomEC1N 8JG
Phone: 44-20-7831-1020
Fax: 44-20-7405-4824
Email: info@haemophilia.org.uk
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Chris James ,Chief Executive Officer
Asociación de Hemofílicos del Uruguay
Address: Marcelino Sosa 2924Montevideo, UruguayC.P. 11800
Phone: 598-2-203-5023
Fax:  
Email: hemofili@adinet.com.uy
Org. type: National Hemophilia Org.
Contact: Sra. Isabel Aldacor ,Presidenta
National Hemophilia Foundation
Address: 116 West 32nd Street11th FloorSuite 1150New York, New York, USA10001-3212
Phone:  
Fax: 212-328-3777
Email: nfrick@hemophilia.org
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Mr. Neil Frick ,Vice President for Research & Medical Information Mr. Val Bias ,CEO
Uzbek Society of Patients with Hemophilia
Address: Usmon Nosir Str. 138Tashkent, Chilonzor, Uzbekistan100059
Phone: 998-93-591-0203998-71-368-6372
Fax: 998-71-273-6316
Email: swanspark@mail.ru

aziza.makhmudova@gmail.com

Org. type: National Hemophilia Org.
Contact: Valentin Nenyukov ,President
Asociación Venezolana para la Hemofilia
Address: Apartado Postal 40770Caracas, Venezuela1040
Phone: 58-212-562-2325
Fax: 58-212-562-2325
Email: avhemofilia@gmail.com
Web site: Click here
Org. type: National Hemophilia Org.
Contact: Sra. Antonia Luque de Garrido ,Coordinacion General de la Asociacion Sra. Ana Carolina Sotillo ,Presidenta
Vietnam Society of Congenital Bleeding Disorders
Address: 14 Tran Thai Tong lengthened roadYen Hoa ward, Cau Giay districtHanoi, Vietnam
Phone: 84-48-587-3721
Fax: 84-43-868-5582
Email: hemophiliavn@hn.vnn.vn

hemophilia@nihbt.org.vn

Web site: Click here
Org. type: National Hemophilia Org.
Contact: Prof. Nguyen Anh Tri ,President Dr Nguyen Thi Mai ,General secretary
Zimbabwe Haemophilia Association
Address: C/O Blood Transfusion ServicesP.O. Box 1122Bulawayo, Zimbabwe
Phone: 263-9-65-094
Fax: 263-9-65-094
Email: vpzha.byo@healthnet.zw

vpzha@yahoo.com

Org. type: National Hemophilia Org.
 

 

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